She was welcome. We went back and forth. Whenever I came to an intersection I would look to the right, the left, then up and down.. She once caught bats for the City of New York. It turned out that Tom and Rita came to town something less than regularly but more than I would have thought. And when I was young, the two things that were unbelievably expensive were long-distance phone calls and plane tickets. I had been afraid of how the story would end. I didnt want to be one more person tugging at her coat, but I was. Karl, being Karl, took the officer around the corner to explain the situation. Im a vegetarian. My husband is a doctor, and I was telling him about this one night. Later, she asked him if hed be willing to record the audiobook of her latest novel, The Dutch House. When he agreed, she began a protracted email exchange with Raphael to work out the details. No events scheduled for January 18, 2023. Common sense and a book - that's all you need. That night I tried to explain it to Karl. You will love her. Mine was the sin of misunderstanding, of thinking that a clinical trial was the point of the story. She shook her head, scrolling. And which, despite several cringe-worthy passages, it is a moving and memorable account of a brief but incandescent friendship. It was the last hour of a long day. And youre going to freeze your head for eight hours every week? Wed been together for a matter of minutes. First the tornadoes, Sooki said, taking picture after picture, the giant root systems pulling up slabs of earth taller than Karl, the bright spring grass meeting the sidewalk at right angles. I flew to New York early the next morning, took a car to New Jersey, signed several hundred books, attended a cocktail-party fund-raiser for the Book Industry Charitable Foundation, gave a talk in a crowded town hall, got to my hotel room in Manhattan at midnight, got up in the morning to tape a segment for the Today show, then was back on a plane. Information; Artists; Auctions; Exhibitions; Magazine; Services; Market Analysis . UCLA would fold her into their trial, everything seamless. She had once shown me a picture of herself standing in the surf wearing a bikini, a sarong tied around her narrow hips. The paintings were bold, confident, at ease. When she gave us the painting she had done of Sparky on the back of the couch, I felt as if Matisse had painted our dog.. They sailed to St.Barts in a beautiful old wooden boat named Christmas. We both agreed that if this was the brink of extinction, it was nice to be together. She wasnt about to tell me she looked good, but it was clear what I was talking about. It has to do with fearing death. The fact that the two of you want me here, that you love me, that you believe in meit makes me believe in myself. A few weeks later Hanks' publicist asks if she will fly to Washington, D.C., to interview him as part of his book tour. Can you imagine Tom sitting at home saying, I cant believe Sooki used my connections to get into a clinical trial in Nashville?, No, of course not, Im just telling you. Our writers hold no party line; their only allegiance is to clarity of thought, elegance of expression and independence of opinion. It's essays. To say that Patchett was impressed is an understatement. , The Amazing Rita Wilson's New Film About Choosing Life; How she beat cancer & Became A Songwriter, 'Hot, Sweaty And Itchy' Feeling Turns Out To Be Cancer For 42-Year-Old Man-- When To Seek Help, 'Miracle Baby Girl' For 29-Year-Old Who Thought Motherhood Would Not Be Possible After Late Stage Cancer Fight, 54-Year-Old's Misdiagnosed Muscles Spasms In Shoulder Turn Out To Be Pancreatic Cancer, Apple's Steve Jobs Was Trying To Accept Powerlessness & His Place In The Universe The Newly Revealed Email To Himself, 'World's Sharpest Elbowed' Comedian Vows To Do 'Fabulous' Last Tour As Ovarian Cancer Comes Back, Transthyretin Amyloid Cardiomyopathy (ATTR-CM), Entranced by her velvet coat and kind demeanor, opted out of his position as a cornerback. Karl had gone back to work by this point, but he canceled his afternoon appointments to drive us to the hangar where my friends kept their plane. She shouldnt stay for us or leave for us. I sent her books on color theory. We can go up and back the same day.. But a few months later, I got an email from Tom Hanks early in the morning. PATCHETT: Every single thing was from scratch. These days were concentrated like no time I had ever known. We kept a common grocery list on the kitchen counter. They were talking like old friends. Books are fun! I think I know what Im doing when in truth I have no idea. Although his superhero mother will not get to see him play in the NFL, Farley will take many lessons he learned from her and apply them to whatever challenges he faces in life moving forward. Sooki hadnt answered the question, but that was the day I felt as though we started talking. Below is my story. Should I have woken them up and made them come down to the basement? Patchetts good intentions to help a stranger she took a liking to cant be separated from her self-promoting instincts to make a story worth writing about. A year and a half had passed since I had picked up his book in my office, and this was where it had taken me: Tom Hanks was willing to read The Dutch House. Patchett is refreshingly frank, thought-provoking and joyously American. Things can get very confused. There she was in the passenger seat, a shy person with a quiet voice. We looked downstairs and in the kitchen and the den. I wouldnt have had this time with you and Karl. Theyd fallen on the mailboxes. She hadnt seen it happen. By the time I was done signing books that night, the event I had scheduled in New York the next day had been canceled. From her patio, she could watch the planes take off and land. What a good idea. So every time I am writing a novel, once I get about a third of the way into it and I really know what I'm doing and I love my characters, I start to think, well, what happens if I get hit by a car? Im sure these words cant adequately convey what was such a radiant message, but it stayed with me so strongly as I woke up during the night, and thats the best I can describe it. He said that Sooki was good when they left. Plenty of nuns were married before., You never know. Then she looked at me, her face suddenly brightened by a plot twist. Shed fallen down some stairs outside of church the night before and twisted her foot and now that foot was swollen and sore. Sooki had been a marathoner, though her best event was a 10K trail run. I find these things go better if you just wing it. Then the two of us stepped out into the blinding light. The cell-phone case also served as her wallet, containing her credit cards, cash, IDs, insurance cardseverything important. I emailed him at work. Ive heard writers say that they write in order to discover how the story ends, and if they knew the ending in advance there wouldnt be any point in writing. On the Trail of a Mountain Lion The footprint was in the middle of the trail. They cant do the Stanford biopsy here? Maybe its all the chemicals I have in me already. Sooki Raphael is Tom Hank's assistant and friend. No one had ever been so welcome. Or maybe I should say I was coming to know her without knowing very much about her. Our conversation was continually derailed by the television hanging over the counter. With our hands on our shoulders we turned left and right, left and right, endlessly. I leaned over to look at her phone. Her California and Tennessee oncologists had conferred so that she could transfer from one hospital to the other without missing a treatment. I like myself here, she said softly. There are suddenly people everywhere. Which she did. We did our best to pretend that what we were doing was normal. The greenroom crowd was then escorted to their seats, and we were ushered to the dark place behind the curtainTom Hanks, his assistant, and I. There was a delicacy about her that was well-suited to baldness. Sooki and I kept up a sporadic email exchange once the audiobook was done. They were waving. Ours was an ephemeral connection common to the modern world, writes Patchett. You dont think this is crazy?, I didnt say that, but I know youre trying to help Sooki.. Our house was a holding pattern, a neutral space without expectation where all that mattered was her recovery. What do your children do? She kept to herself, sleeping and painting, trying to wrestle it out. The trick wasnt getting the mushrooms. When it. We would all proceed with our lives except that now we would be together. We love you, Sooki. I had thought this was a story about Tom Hanks, the friendly actor-writer who had recorded my book, but I was mistaken. She had said almost nothing and yet my eye kept going to her, the way ones eye goes to the flash of iridescence on a hummingbirds throat. Writers who do readings at the bookstore are often stashed in the guest room. God damn it, get inside, I said to my husband. assistant (as Susan 'Sooki' Raphael, Mr. Hanks) 2012 Game Change assistant (Mr. Hanks) TV Movie 2012 Larry Crowne assistant (Mr. Hanks) 2011 Big Love assistant: Tom Hanks assistant: Mr. Hanks TV Series 2006-2011 48 episodes The Pacific assistant: Mr. Hanks (Mr. Hanks) TV Mini Series 2010 7 episodes Where the Wild Things Are assistant (Tom Hanks) She had wanted to be a better person, and here she believed she was better. I had a concrete reason to be careful about the germs I was bringing into the house. The essays range in subject, but often consider relationships in Patchett's personal and professional life, including with her father and stepfathers; her decision not to have children; the close friendship she develops in the early days of the COVID-19 pandemic with Tom Hanks' assistant Sooki Raphael. All three of us had lost our fathers, all three of us were close with our mothers. I leave the house at 6:30 am every weekday morning to make it down to the bottom basementfloor 2Bat UCLAs Westwood Medical Center by 7:30 am. KELLY: Wow. Figuring out Nashville was small potatoes for someone who had put together a Thanksgiving dinner for a film crew in Berlin. Karl came home and we sat on the couch and watched a storm tearing up the backyard. The more literary essays include an introduction to the stories of Eudora Welty (No writer I know of tells the truth of the landscape like Welty); pieces on book covers (I finally knew how to ask for what I wanted I would send my books into the world wearing the best suit of clothes I could find); childrens stories; sitting next to John Updike at a lunch at the American Academy of Arts and Letters; and perhaps my favorite, To the Doghouse, on literary influences. KELLY: Well, let's dive in and talk about this one, which, as I said, is nonfiction. Then as the world was ensnared by a global pandemic, the two friends formed a pandemic pod. In a piece for Harpers Magazine called These Precious Days, Patchett told the story of their friendship and spoke of her admiration for the paintings Raphael created at her home. Sitting there in her shaggy pink rock-star coat, Sooki told me how much shed come to hate the cold. I was trying to read her lips. No events scheduled for January 19, 2023. People were out with their dogs. Its okay for us to be in the same room, Sooki said, a statement rather than a question. They told me the story later: How after they landed, when they were all standing together on the lawn outside the small airport, a police officer came and told them they had to disperse. The thought of Tom Hanks benefiting from my assistance struck me as funny, and then I forgot about it. I tried to imagine chemo while living in a hotel. I was overcome by a sense of order in the world: if I hadnt picked up that book, if I hadnt gone to D.C., if we hadnt stayed in just enough contact for her to tell me a year after the fact that she had cancer, and if I hadnt mentioned it to Karl, she wouldnt have found her way to the only clinical trial in the country that both matched her cancer and could take her immediately. Our newsletter vital information, hope, and healing, delivered weekly. I hadnt meant this to be my career. Whats fascinating fails to translate. The actor who starred in the romantic movie You've Got Mail sat down and wrote me a letter in his California office in Santa Monica. She was just coming out for, really, a matter of days so she could start it here and then fold into the UCLA trial. Get as many nuns on this as possible. We have some picnic tables outside the police station, the officer said. She looked startled. But it turned out to be a good job, and Tom was a nice guy, and the travel was interesting. Whether you loved it or hated it may depend on your feelings about celebrity culture since the benevolent presence of Hanks and his wife, Rita Wilson, hovers in the background. It was enough just to be together in all that darkness. And I want you to explain why that felt easier to write during a pandemic than fiction. She had transferred her life into brushwork, impossible colors overlapping, the composition precariously and perfectly balanced. We shined them into the beds of purple iris that stood tall and straight, untouched. She and Ken put what mattered most in the car and started driving, waiting to see which way the wind would shift the wall of flame. The chemo, the clinical trial, the yoga and the vegetables, the prayers of nuns and all the time to paintwhat if it added up to something? Im just wondering if you got in the habit of not talking about yourself because of the work you do. I told her about a friend of mine who worked as an assistant for a hedge-fund manager in New York, and how she parked every piece of herself at the door when she went to work in the morning. We went out to the street on that bright morning to see a fire high up in the distance. It hadnt occurred to me that he might say yes. All that breathing and twisting and flexing fed her, and the calm voice of the instructor seemed to be speaking directly to her. My official badge-carrying title at the New York City Department of Healths Bureau of Animal Affairs was public-health sanitarian. The badge would have allowed me to inspect and close down pet stores if I wasnt too busy catching bats. Painting fell into the category of what she meant to get back to as soon as there was time, but there wasnt timethere was work, marriage, and children. We talked about art. She had made up her mind that it was going to be okay. Karl was home from work when we got to the house, and he and I showed Sooki around. He watched as she went through multiple rounds of chemotherapy while still working and taking care of her family. I studied what did not come naturally, she told me. She looked like a tiny rock star in her shaggy pale-pink coat and sunglasses and high boots. Karl is the king of the hospital. Sooki told me they were skinks. I had no idea whether it was a good idea, but she could. I was also greatly occupied by the bookstore. In a previous interview with SurvivorNet, Cuozzo tells us how she found comfort expressing herself through her work. I was struck by an overwhelming sense of wanting to know her, of not wanting to miss Sooki while she was here. And painting and painting. A similar medical trial would begin months earlier in Nashville. My intention was to help Sooki. It meant she didnt have to sit out chemo for a week. These Precious Days by Ann Patchett reviewed. A few more pages would send me off to sleep, so I went in search of a short story. She must miss all those people she so rarely spoke of. feb. 15, 2020: I will try to keep this quick as I know you have many fish to fry. PATCHETT: Yes. That night there was still no power, and so we lit candles. Suffice to say the car I was strapped into followed a tunnel down into dark and darker colors, narrower spaces. Patchett writes. As Sparky stopped and sniffed, I offered up Sookis recurrence as a story to tell, not a problem to solve. And then I found out that she had had pancreatic cancer, that she had had a Whipple, that she had gone through chemo and radiation, that she had been pronounced cancer free, that her cancer came back. They have it, she said. Do you want to come downstairs? she asked. How could there still be so many things I didnt understand when our time was nearly over? Where were you born? Called These Precious Days(Harper, 320 pp., out of four, out Tuesday) after a line from the pop standard September Song, memorably recorded by another Nashville legend, Willie Nelson, the essay lends its melancholy title to a new collection of essays by one of Americas premier writers. I know how to structure my time. Patchett, co-owner of Parnassus Books in Nashville, has an essay collection revolving around the story of her friendship with Sooki Raphael, Tom Hanks's assistant. Sooki Raphael, Mesa Tree, Topanga, from 'Vivid Series' 16 x 20 inches. I didnt know how the story would end. You yourself are heartfelt, and all the love in the world has been expressed. ROSEGALLERY is presenting These Precious Days, a solo exhibition of paintings by Sooki Raphael, on view from 10 April until 10 May, 2021. Catalpa flowers littered the sidewalk, though I hadnt realized the catalpa trees were in bloom. In her tribute to Raphael, Wilson pointed to her friend as proof that it is never too late to explore your creative passions. She had transferred her life into brushwork, impossible colors overlapping, the composition precariously and perfectly balanced. Sooki of the magnificent coat. I should have planned better, she said. She was painting. Many were the mornings the yoga felt endless to me, and so I would give her a wave as I left the mat and headed off to my desk. Unlike so many other small businesses, we had the means to pivot. I made a documentary about my father. Shed only been here for a couple of hours. With many creative endeavors - from clothing to ceramics to a long career in the film industry Raphael has contributed to numerous projects, busily attending to the arts through a multiplicity of avenues. When was she first diagnosed with pancreatic cancer? My doctor paired up some words I never thought I would hear together: pancreatic cancer and youre in remission! It seems like an early declaration, but Ill take it! I feel like I could pop into Trader Joes and have them replaced with those happy little stickers they hand out to well-behaved childrenit undermines my confidence in the sophisticated nature of the whole process just a bit. We were still at the beginning then. She had set up her life in the basement of our house, a place we never went. She painted and slept and did her work; she had her Zoom meetings and her Zoom gatherings with friends. They were dead, the wires, werent they? Or its supposed to slow it down. She hadnt lost her hair on FOLFIRINOX, though shed lost her sense of taste and smell, the feeling in her feet and hands, and twenty pounds. She had her surgery at Duke and survived. But after years of infections, she decided to remove her implants and go flat. Her artwork reflects a deeply personal exploration of body image and sexuality. On the porch, Sparky joined in. My reading on this flight is a book called Radical Remission. The power was out for four days, those rarest of days in Nashville when it was neither too hot nor too cold. Copyright 2022 NPR. Sooki, who was light and life and color itself. Still, wasnt it worth mentioning? In making the journey to Oz, she had found the strength and clarity she needed to go home again. I would leave again on Sunday for Virginia. The three of us were standing, back of the theater in . PET scans) were showing no sign of disease. A Celebration of Life will take place in Topanga, CA on August 21, 2021. I looked up every anomaly online, settling on too much black tea, or maybe the wrong color shoes. There was work to do. And he said, oh, well, ask her if she wants to send me her files. Just you and Karl?, I thought about it for a minute, shook my head. But I was a freshman at Sarah Lawrence, and my cousins had brought me home for Halloween my first year of college because I was really homesick. There is nothing more interesting than time: the days that are endless, the days that get away. Now I look like an improvised elementary school art project, and in addition to owning my permanent tattoos, I have to nurture my three little stickers and hand-drawn sharpie marks so they last six weeks. One of the last things I understand when Im putting a novel together is the structure of time. She certainly isnt short of abundant care for others, and by the time you get to the end of this collection its hard not to feel glad she saved her energy for writing. I didnt worry about her embarrassing herself. Email tilts toward the overly familiar. He and the other pilot talked flying with Sookis mother. Get help here. This wasnt about an inability to get good medical care; it was about not being able to find a clinical trial that both matched her cancer and could accept her immediately. I had cut a small bouquet of Lenten roses and put them on the night table. He claims our lives are better for all the people I bring into the house. The next day she brought up the vacuum cleaner to vacuum off her yoga mat. What about the children who were left behind in that house she hated? All this time Id been afraid of prying, only to discover that Sooki was happy to talk, to tell me about the bats, the sailboat to St.Barts, the desert in Tan-Tan, the surgery. Tom Hanks was so completely absent from our conversations that I once asked her if he knew where she was. Finally he stopped going in. It was so much more beautiful, the overlaying color of every petal, the very light pink against the blackness. His wife, Rita Wilson, is a singer who writes with people in Nashville, where songwriting is a group activity. Subscribers can find additional help here. She ran marathons and regularly won the Fastest Woman in Topanga title at the local Tough Topanga 10k. Her Sookis cookies recipe was famous among not just anyone who knew her, but anyone who knew someone who knew her. She wrote home with vivid tales and photographs that demonstrated the color and beauty of her travels in the most unique ways. The essays, even when they are nominally about something else, are about the weight and grief of relationships: with her father and two stepfathers, her best friend, her husband and, improbably, actor Tom Hanks' assistant, a woman named Sooki with whom Patchett develops a deep bond. Id come up with the answer months ago. He knew. I sent you another book that will show up eventually, a tiny French novel I love called The Lost Estate (Le grand meaulnes) by Alain-Fournier. Wonderful Sooki! I had set my intention going in: I wanted to help my friend. She lit up with all that breath. I could see Ken and how hes always been there for me, how he steps back to let me shine. He shook his head. I walked from my hotel to the theater and showed my ID to a guard who then led me to the crowded greenroom. Wait and see. PATCHETT: So I first met Sooki Raphael backstage when I was interviewing Tom for his collection of short stories. I could have said I was busy writing a novel, and that would have been both ridiculous and true. Not everyone is like this. We lived in that good world made up of yoga and chemo, the bookstore, cooking, painting, talking over dinner. I floated upstairs in a world that would not stop changing. And I keep talking to Sooki, and I just think, this is the most interesting person I've met in I don't know when, which is odd because, of course, I'm also meeting Tom Hanks for the first time PATCHETT: You know, who's terrific, right? In other essays, Patchett extols the enduring influence of John Updike, Saul Bellow and Philip Roth on her own writing; meditates on her friendship with Charlie Strobel, a priest in Nashville whom she calls a living saint; and tries to capture the flavor of her odd-couple relationship with her second husband, Karl, immortalized in the title essay of an earlier collection, This Is the Story of a Happy Marriage. As a medical doctor on staff at the Nashville hospital where Raphael was treated for advanced pancreatic cancer, he plays a crucial role in These Precious Days., Finally, theres that essay. A car was coming to pick them up. No one could keep up with her. She was teaching at Bennington, in Vermont, and this was the first day of classes. They reviewed her records together. And so I couldn't call my mom. I knew I would write about Sooki eventually, I had told her so, but I had no idea what Id say. I was an introvert again. Ann. They took ten vials of blood on one visit, twenty-eight vials the next. They take magic mushrooms together (a good experience for Sooki, dreadful for Ann). Actress & Fitness Guru Jane Fonda, 85, Says Chemo Hit Me Hard Fighting Lymphoma Years After Breast Cancer, Rock Band Kiss Co-Founder Peter Criss, 77, Male Breast Cancer Survivor, Releases New Version Of Classic Dirty Livin, For Healthy Skin Month, Take Advice From Vanderpump Rules Star Ariana Madix, a Melanoma Survivor, and Speak Up About Concerns, You Can Overcome, Says Rebecca Crews, 56, How She and Husband Terry Crews Got Through Losing Their Home, Five Kids, And Cancer. Many were introduced to Sooki Raphael through Ann Patchett's book, "These Precious Days" There Sooki's grace, creativity and strength were immortalized though Ann's words. She looked at me. And this led to you meeting Sooki. I was leaving for Virginia. It was possible, and I had no intention of thinking about it. PGVs (pathogenic germline variants) are changes in reproductive cells (sperm or egg) that become part of the DNA in the cells of the offspring. She loved her friends, and supported them with all she had to give. But the clinical trial she needed was here in Nashville at the hospital where my husband worked. About a quarter of the trees were down. Im not sure I can describe it without it sounding like an extension of the mushrooms, but it had that kind of depth and clarity of message for me. Don't have an account? The authoritative record of NPRs programming is the audio record. We repeated these facts, we made them a mantra. document.getElementById( "ak_js_1" ).setAttribute( "value", ( new Date() ).getTime() ); Five-time GRAMMY Awardwinners and living legends, the Blind Boys of Alabama both defined and innovated traditional jubilee gospel, turning their live shows into roof-raising musical Multi award-winning Canadian singer-songwriter and pianist Laila Biali masterfully mixes jazz and pop, bringing virtuosity and unpredictability to songs that are concise and catchy (Washington Smothers Theatre, Pepperdine University 24255 Pacific Coast Highway, Malibu, CA. I cant tell you how grateful I am. Kate DiCamillo is coming later on Wednesday. I sent more books: books Id written, books I thought shed like, Kate DiCamillo books to be read with her grandchildren. Moving Forward after Losing a Loved One to Cancer. I wouldnt be on the same floor of the house.. We had been together for the duration of this new world. I tried to find a place for this new fact in the equation but all I could come up with was the obviousI didnt know her. I scooped up a handful for no reason and carried them with me. And so she meets Sooki Raphael, Hanks' assistant. She was Tom Hanks's assistant and there was work to do. He walked me through the publishing process: being thrilled by acceptance, ignoring reviews and then having the dream of bestsellerdom dashed What mattered was that you knew how to love the job.. KELLY: Speaking of friendships that we make in college, early in life when we - it feels like we have all this time to just live in the present, tell me about another essay - "The First Thanksgiving." Even as Sookis white count continued to hover in the neighborhood of nonexistent, her CA 19-9 cancer marker number (that unreliable indicator we relied on) was dropping. (He also flies a Cessna plane, which comes in handy when Sookis mother is taken into hospital in New York.) Sooki had strength and courage. 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